Long lapse but much has happened. Started happy. Oh so happy and now it seems I am just trying to pick up the pieces.
So I know I have blogged before that hubs and were thinking about children. My A1C was around 5.9 and I was busting my ass to get it there. I have the pump and got a Dexcom in June. I was working hard. I will post more about Dex later (I really do love it).
Well August 25 we found out we were pregnant!! I got up EARLY that morning to test b/c I was so fatigued all the time, was constantly peeing, and my boobs felt ENORMOUS (seriously went from A cup to C in a matter of weeks). Now I had had really cute plans on how to tell Stephen that we were pregnant involving a wrapped onsie that Maddux would bring to him while wearing a big brother bandana. As soon as that positive showed up all those plans went out the window since I didn't have anything made and I was just to impatient. I ran out of the bathroom telling Stephen to wake up and surprisingly he got up pretty easily (He is a BEAR in the morning). I gave him the pregnancy test and he looked at it and said "is this real?" I said yeah Maddux peed on it he is pregnant. We were beyond thrilled. Seriously over the moon and this baby was so wanted. Everything was going great no nausea just major congestion and my boobs really took off (I was thrilled at this since I have never been very voluptuous). We talked, we had names, we discussed how to tell our parents, what everyone's reactions were gonna be, how the dogs would handle it (BTW I think they are going to be the most amazing big brothers). We had plans, we had dreams, we had so much hope.
I went to my parents for a week to see the family. We didn't tell anyone just to be safe. We were waiting for our first appointment on September 26. We were looking forward to that appointment and I could not wait to see that little beating heart. On the 17 I started having really high blood sugars. No matter what I did it was just high. I set a temp basal at 100%, I took double insulin when I bolused, I took over 100 units in 1 day. No matter what I did it just didn't come down to a place I would have liked it. It was back to normal the next day but I just had this weird feeling. Then on the 20th I started bleeding. I called the doctor and since I was not cramping they said not to worry but that I needed to take it easy. I called Stephen and we both decided that he was going to come get me since he left me there when we went to my nephews birthday and my parents were going to bring me back the next weekend so we could all go to the Ozark Folk Center. Stephen started the 2.5 hour drive to my parents house just to be on the safe side. The bleeding got heavier but no cramps. I had a feeling that it was over. I cried and cried. I was heartbroken. About 30 minutes before Stephen got there it was done. The baby was gone...
Stephen is heartbroken, I am heartbroken. We both feel very empty. I am sad but I feel guilty. I keep running through everything I ate, all my blood sugars, how I handled everything. Where did I go wrong? How could this have been prevented? What could I have done differently? Stephen assures me that there was nothing I could have done but I can't help feel that guilt. My body was the one that failed. I just don't know. I have an appointment with the doctor Wednesday. Now we are just picking up the pieces and trying to rebuild our beautiful castle one tear at a time.
Monday, September 24, 2012
Sunday, June 17, 2012
Camp
I am packing and getting ready for diabetic camp. This camp is a day camp by my parents house and I have been going for 10 years. I LOVE camp. I went there as a kid newly diagnosed and now go there as an adult to help work it. I can not express the importance of camp enough to parents. This is the one place I feel normal, I don't feel alone and everyone there is going through the exact same thing as me. The camp I go to is completely free for all diabetic children and their siblings as long as the siblings are diabetic for the week (have to check, go to education and carb count just like their Dsiblings). This camp is run by an all volunteer staff with nursing students from the local college. I love that the students go through the camp b/c I feel they learn so much more there then they would ever learn in the classroom. The students get hands on experience dealing with type 1 kids. They have fun but most importantly they get real world experience in how to handle type 1 diabetes b/c we all know T1 does not follow the book and we are all different. Kids with medical problems really benefit going to med camps. After my nephew was diagnosed with Duchenne Muscular Dystrophy we found a camp nearby and we signed him up. Last week was his second year going to MD camp and he won the camper award. He LOVES camp also even though right now his disease has not progressed and he is showing no outward symptoms it will someday. At medical camps kids learn about their disease, how to handle it both medically but also emotionally. And most importantly kids make friendships that last a lifetime with others who are going through the exact same thing. I have friends from camp who I can call or text or write on facebook about the pitfalls and triumphs of diabetes and there is no judgement just kind words. I can lean on them and when something happens like when I broke a bottle of insulin and couldn't get a new one they are there to spot me. My parents also loved camp. They met other parents who were a great support. So parents research and find some camps for your kids they will have a blast, and learn about diabetes, and make a ton of friends.
Wednesday, May 30, 2012
It was enchanting
I have been diabetic for a long time now and I am not writing about how enchanting it is to have diabetes. Diabetes has interfered with so much of my life and brings many fears of the unknown that is before me. Diabetes is much like the boogie man someone that hides in the shadows and you may forget about him for a short time but as you lay in bed at night that fear is brought to the forefront of your mind. As a teenager one of my fears was that I would never meet a special someone that would take me and my diabetes on. That would love me through thick and thin, health and sickness and grow to understand and help me. Someone that would be MY prince. You all know I did meet him but you do not know how I met him, how he found out and reacted to my diabetes and how we grew from 2 very separate souls to a united being were I feel he is just an attachment to my body.
First let me say through high school people did not approach me; girls or guys. I was treated as a big germ. Teachers were scared of me, girls thought I had too much drama and guys thought I had too much baggage. I understand on some level yes diabetes is a very serious disease but I am a person who happens to have it and it does not have me. I am not diabetic Kendyl I am JUST Kendyl. But, once people find out about this they treat you differently.
After high school I moved 2.5 hours from my home to go to a school in central Arkansas. I did not remain friends from most people from high school and in all actuality I am only friends with 1 from high school and she is my best friend in the entire world. She understands me and she has her own baggage and drama. So I left my hometown and moved into a dorm at my college. I loved my rooms, she was and still is the best. Well she met this guy on Halloween of 05 and they started to spend a lot of time together. One night she called me and told me to head over to our friend J’s house. Well I didn’t know but my rooms, K, had set up this plan with her boyfriend to introduce me to someone. I got there before he did but they still didn’t tell me this plan. We were all hanging out and the doorbell rang. J answered and she already knew him and was excited for him to come in. He was wearing a blue hoodie, cubs hat, jeans and a cross necklace. He had dark brown hair and golden brown eyes and a great smile. I liked him immediately, I knew there was something there or more of I wanted for something to be there. J introduced us and then everyone left us alone. We talked for hours about everything and nothing. I loved how he looked me in the eyes as we spoke. As everyone else was leaving we decided to go to IHOP. There we ate pancakes and talked more. We discovered we had much of the same taste in shows and movies. And now its funny but he had me at “I have all the seasons of Futurama.” This was in November 05. I was 18 and he was 20.
He found me on Facebook the next day. I was so excited and immediately sent him a message saying how much fun I had and gave him my number. The ball was in his court and I so hoped he would want to play. He wrote me back briefly but didn’t actually call or set up another date! We didn’t hang out until New Years but after that we started spending all of our free time together. Not long after Valentines day he called and said there was someone he wanted me to me. I was nervous but got all gussied up and headed over to his house. I rang the bell and I totally thought he was wanting me to meet his parents. Well he opened the door and there looking back at me was the most beautiful blue eyes. He had gotten Shadow and he wanted me to be the first one to meet him. Soon after that I was officially his girlfriend. I was excited but there was one problem. I had a huge secret I was keeping and believe me I had no idea how I kept it that long. I had never told him I was diabetic and I was scared to death to do so.
It wasn’t long after we had become officially “boyfriend” and “girlfriend” that he discovered I was diabetic. We were relaxing on the couch and when I got up my pump had fallen out of my pocket and gotten stuck in the couch cushion. He was sitting next to me when I got up and he was so confused at this clear tube attached to what he thought was a pager was attached to me. He started pulling on it and asked “Why do you have pager? Are you a drug dealer?” I knew the gig was up and I had to tell him. I very plainly told him that is my insulin pump and I am a type 1 diabetic. My head raced and I just knew he would dump me. Who would want to take that on? Well he just stared at me and said OK and went back to watching the movie we were watching. I was floored no one ever acted so non-chalantly about this. Over the next few years he learned all he could about it and even went to diabetic camp with me to work. He takes care of me when I am sick and loves me for who I am diabetes and all. It was truly enchanting to meet him. I would not be here without him. Yesterday we celebrated our second wedding anniversary and we are just as nerdy, carefree and happy as ever!
Diabetes doesn’t just affect me. It affects those around me and those that love and support me. Diabetes isn’t just my disease but my support group has taken it on also. Without my amazing support group of not only my husband, but also mom and dad, my siblings, my in-laws and my friends I would not be here. Every diabetic needs a few angels watching and helping them so to all you who are someone’s support group I thank you.
And as for me and my prince…..
The rest is history…..
First let me say through high school people did not approach me; girls or guys. I was treated as a big germ. Teachers were scared of me, girls thought I had too much drama and guys thought I had too much baggage. I understand on some level yes diabetes is a very serious disease but I am a person who happens to have it and it does not have me. I am not diabetic Kendyl I am JUST Kendyl. But, once people find out about this they treat you differently.
After high school I moved 2.5 hours from my home to go to a school in central Arkansas. I did not remain friends from most people from high school and in all actuality I am only friends with 1 from high school and she is my best friend in the entire world. She understands me and she has her own baggage and drama. So I left my hometown and moved into a dorm at my college. I loved my rooms, she was and still is the best. Well she met this guy on Halloween of 05 and they started to spend a lot of time together. One night she called me and told me to head over to our friend J’s house. Well I didn’t know but my rooms, K, had set up this plan with her boyfriend to introduce me to someone. I got there before he did but they still didn’t tell me this plan. We were all hanging out and the doorbell rang. J answered and she already knew him and was excited for him to come in. He was wearing a blue hoodie, cubs hat, jeans and a cross necklace. He had dark brown hair and golden brown eyes and a great smile. I liked him immediately, I knew there was something there or more of I wanted for something to be there. J introduced us and then everyone left us alone. We talked for hours about everything and nothing. I loved how he looked me in the eyes as we spoke. As everyone else was leaving we decided to go to IHOP. There we ate pancakes and talked more. We discovered we had much of the same taste in shows and movies. And now its funny but he had me at “I have all the seasons of Futurama.” This was in November 05. I was 18 and he was 20.
He found me on Facebook the next day. I was so excited and immediately sent him a message saying how much fun I had and gave him my number. The ball was in his court and I so hoped he would want to play. He wrote me back briefly but didn’t actually call or set up another date! We didn’t hang out until New Years but after that we started spending all of our free time together. Not long after Valentines day he called and said there was someone he wanted me to me. I was nervous but got all gussied up and headed over to his house. I rang the bell and I totally thought he was wanting me to meet his parents. Well he opened the door and there looking back at me was the most beautiful blue eyes. He had gotten Shadow and he wanted me to be the first one to meet him. Soon after that I was officially his girlfriend. I was excited but there was one problem. I had a huge secret I was keeping and believe me I had no idea how I kept it that long. I had never told him I was diabetic and I was scared to death to do so.
It wasn’t long after we had become officially “boyfriend” and “girlfriend” that he discovered I was diabetic. We were relaxing on the couch and when I got up my pump had fallen out of my pocket and gotten stuck in the couch cushion. He was sitting next to me when I got up and he was so confused at this clear tube attached to what he thought was a pager was attached to me. He started pulling on it and asked “Why do you have pager? Are you a drug dealer?” I knew the gig was up and I had to tell him. I very plainly told him that is my insulin pump and I am a type 1 diabetic. My head raced and I just knew he would dump me. Who would want to take that on? Well he just stared at me and said OK and went back to watching the movie we were watching. I was floored no one ever acted so non-chalantly about this. Over the next few years he learned all he could about it and even went to diabetic camp with me to work. He takes care of me when I am sick and loves me for who I am diabetes and all. It was truly enchanting to meet him. I would not be here without him. Yesterday we celebrated our second wedding anniversary and we are just as nerdy, carefree and happy as ever!
Diabetes doesn’t just affect me. It affects those around me and those that love and support me. Diabetes isn’t just my disease but my support group has taken it on also. Without my amazing support group of not only my husband, but also mom and dad, my siblings, my in-laws and my friends I would not be here. Every diabetic needs a few angels watching and helping them so to all you who are someone’s support group I thank you.
And as for me and my prince…..
The rest is history…..
Wednesday, May 2, 2012
Probably TMI
So this post will probably be full of way too much information but honestly I really don't care so if you get grossed out about periods don't read anymore. Ok so I have mentioned before how I have talked to my endo and gyno about pregnancy (seriously the whole thought of it still freaks me out). Both have given me the go ahead. However, I am getting a Dexcom and still working on lowering my A1C more w/o the lows. I can order the Dexcom on my birthday since my insurance company will not cover it till I am 25 b/c apparently 25 is some magic age and I will finally be an adult. So sometime after June 5th I will be on the Dexcom (is it weird I am excited for another thing to inject into my skin and another robot part?).
So both docs have given the go ahead and I have had the Mirena taken out (wasn't as bad is it going in holy shit that thing was HORRIBLE) Now when I had the Mirena I did not have a period and it was WONDERFUL!! Seriously you boys are so lucky. Well now that the thing has come out aunt flo has come back with a vengeance! I have turned into a crampy, bleeding, emotional wreck. And just to add to the bullshit of a period and how my body completely HATES me I of course got it during finals week. So lack of sleep, crampy, bleeding, emotional wreck I am. It is now not unusual for me to cry ALL. THE. TIME over god knows what. I cried in Kroger the other day b/c they were out of diet coke (I have a problem). This whole girl thing totally sucks! And if the Mirena would not cost me another hundred bucks to get back I would totally go get that sucker replanted into my uterus. For an entire year I felt pretty good, I may have gained a little weight but seriously no complaints (well I have a complaint about that but that is for another time and if I write about it now I will totally turn into a blubbering mess but lets just say someone called me fat). Now I am stressed (finals seriously do not help) and I am thinking I need drugs b/c these crazy mood swings are really driving me nuts (poor Stephen I have been so bitchy lately and he asks why and I just don't know).
Now lets talk about diabetes... Yeah I am to the point this week I. GIVE. UP! I am on a roller coaster and I am hoping to get off it SOON! I have been running SOOOOO high. And spitting out ketones like they are tokens. I feel terrible but after this week I am hoping they will go away. Ever wonder why girls have a sex change? Seriously periods suck.
So both docs have given the go ahead and I have had the Mirena taken out (wasn't as bad is it going in holy shit that thing was HORRIBLE) Now when I had the Mirena I did not have a period and it was WONDERFUL!! Seriously you boys are so lucky. Well now that the thing has come out aunt flo has come back with a vengeance! I have turned into a crampy, bleeding, emotional wreck. And just to add to the bullshit of a period and how my body completely HATES me I of course got it during finals week. So lack of sleep, crampy, bleeding, emotional wreck I am. It is now not unusual for me to cry ALL. THE. TIME over god knows what. I cried in Kroger the other day b/c they were out of diet coke (I have a problem). This whole girl thing totally sucks! And if the Mirena would not cost me another hundred bucks to get back I would totally go get that sucker replanted into my uterus. For an entire year I felt pretty good, I may have gained a little weight but seriously no complaints (well I have a complaint about that but that is for another time and if I write about it now I will totally turn into a blubbering mess but lets just say someone called me fat). Now I am stressed (finals seriously do not help) and I am thinking I need drugs b/c these crazy mood swings are really driving me nuts (poor Stephen I have been so bitchy lately and he asks why and I just don't know).
Now lets talk about diabetes... Yeah I am to the point this week I. GIVE. UP! I am on a roller coaster and I am hoping to get off it SOON! I have been running SOOOOO high. And spitting out ketones like they are tokens. I feel terrible but after this week I am hoping they will go away. Ever wonder why girls have a sex change? Seriously periods suck.
Wednesday, April 25, 2012
One more week
One more week. I can do this just one more week. One more week and I am done with college. One more week that is all. But this last week is killing me. Blood sugars insane running large ketones from stress and not really sleeping. Trying to finish my seminar paper and then add on all the other research papers for my 5 other classes and then finals. Endo wants me on strict bed rest because of the ketones but I don't have time for that. Let me make it through this one LAST week. I can do this, I need to do this, I have to do this. Diabetes sucks
end
end
Wednesday, April 11, 2012
Happy Anniversary
So I have been watching Body of Proof lately since the daughter of the main character was diagnosed with diabetes. I mainly started watching to see how they were going to handle the D diagnosis on the show but have found that I actually really like the show even without D. So last episode they showed her putting on her pump (the actress is actually diabetic) and how her mom was meddling in her business and how it irritated her. I actually found it right on point. Since my diagnosis (today is actually my anniversary so happy anniversary to me) I do not think I have gone a day without my mom asking how my sugar has been. I know most people would say hey I am almost 25, I am married and what not why is my mom still meddling with my health but I do not see it as meddling. It is a comfort that she still asks, that she still wants to be apart of my diabetic part of life. Even though I am 24 years old and I have 10 years of this under my belt I still take comfort knowing that my mom and dad are there for me and they want to be there to support me and they want to be apart of not just me but also my diabetes. I know I went through many years were I found it annoying but I look back now and I am thankful that she was so worried about me, that she made me take care of myself, that she did meddle. I am thankful for her support, I am thankful that she has been there. And to all you parents out there with D kids they too will go through a time were they are sick of you asking about their diabetes but continue to ask, continue to be pushy when it comes to their health they will thank you in the long run. So in honor of 10 years being a part of a club I never wanted to join I want to thank my mom and dad for making me a responsible diabetic.
Tuesday, April 3, 2012
Endo
Yesterday was my 3 month visit with the endo. I love Dr. R he is great. We discussed my upcoming float trip and he said even though animas is waterproof he thought it would probably be better to disconnect and just take a novolog pen with me. I asked about maybe taking a little lantus b/c its 6 hours he said no just to check every hour and if I need to bolus just shoot up. After looking at my graphs and everything I brought he also suggested that I bolus a unit or 2 before I excersise b/c as he put it "None of you type 1's go by the book and you are all crazy different" and I am just one of those weird people who spike with exercise. Thanks doc.
We also talked aboutpregnancy (did I really just type that). Ok still kinda freaking out that this is even been brought up. I just don't know how I feel about it. I feel excited but also it scares the shit out of me. Stephen is thrilled to be talking about it but I don't think he knows what all pregnancy and the kid that comes at the end entails. He just keeps telling me everything will just work out. He seems to think its going to be a peice of cake however he isn't the one with diabetes or the one pushing the kid out. It would be so much easier if he was the one pushing the kid out. Maybe someone can Fedex us a kid that seems so much less painful. Seriously I am NERVOUS!! Well doc said my A1c was pretty good (6.2) but he would like it lower and he is also worried that it was lower because of all the lows I have so he would like me to work on it. That being said he is sending in the order for the Dexcom and we are hoping insurance approves. Send me good thoughts on getting a Dex fast and easy =)
Now back to my seminar paper (which is killing me at this moment but that is for another post)
We also talked about
Now back to my seminar paper (which is killing me at this moment but that is for another post)
Thursday, March 29, 2012
What would you do?
In a couple of weeks my environmental history class is going on a field trip to float the Buffalo river here in Arkansas. We are camping on Friday then floating on Saturday. Stephen is going with me since I just do not feel comfortable making my class or professor responsible in case something really crazy happens with my blood sugar (ie go low and pass out even though this has not happened in YEARS still gonna play it on the safe side). Now my question is what would you do with the pump? I know the Animas Ping is waterproof but I don't know if I want to risk it. We are going to be kayaking down the river on an 8 hour trip. I already know I am not going to risk my ping meter and just going to bring a couple of my one touch minis (I have a million of these since I get a new one at camp every year). Should I just do MDI for the trip or keep the pump on? I just don't know but I am going to ask a couple of my diabetic friends from camp and ask the endo on Monday to see what he says. I have about 3 weeks to figure it out though. So what would you do?
Monday, March 26, 2012
The fear...
Everyone knows how diabetes affects the body physically; the complications, the shakes, your eye sight, your kidneys, your limbs. We all know people who are facing these complications but no one talks about the cruel mind tricks we go through. The fear that that may be our future, the fear that our disease will win. The mind tricks that get played over and over every time a too high or too low number shows up on our meter. And now that I am an adult and married the fear that my genes hold this horrible disease that I may pass on to my children. That is my greatest fear that my future kids will be saddled with this and it would be my fault. I have talked incessantly with Stephen about this. I do not think he understands why I fear this so much. He just tells me who better to lead a child through these murky waters of diabetes then a mother with diabetes. I don't want to lead my children through this. I don't want my children to ever have the pain, the fear, the loneliness that this disease brings. I don't want them to loose their carefree childhood to this and this is what I fear the most. I am not saying I didn't have an amazing childhood because I did but it was not the same as other kids and I knew it. I knew I was different, I knew I had to do things other kids didn't, and for a long time I thought I was the only one and I was so lonely. I do not want that for my children. I want them to run and play and not have to stop. I want them to be able to eat cake and ice cream at a birthday party without ever thinking about it.
I know kids are in my future at some point and I will have to face the fear that one of them may become diabetic and I hope I can create an environment my parents did. Diabetes is just apart of me but it does not define me. I just hope it will not define any future children I may have.
I know kids are in my future at some point and I will have to face the fear that one of them may become diabetic and I hope I can create an environment my parents did. Diabetes is just apart of me but it does not define me. I just hope it will not define any future children I may have.
Friday, March 23, 2012
Please explain to me this
So I have started this couch to 5K. I am wanting to be toned for this summer. So I check my sugar before I start I like to be around 150. I think I wont go low and I will end probably in the 90-100 range... WRONG!! Of course it doesn't do what I think its gonna do. Guess what I am not even close and no I am not low. I was freaking 303 when I got out of the shower after my run!! I checked ketones none there but seriously!! SERIOUSLY! 303! Did my body go into shock? Can anyone explain to me why my BG went up instead of the normal going down? Isn't that what is supposed to happen? I always thought when you exercised your blood sugar starts to drop or have I been completely wrong about that this whole time? BTW this has not just happened once its happening every time I run... Maybe I need to find a new exercise...
Monday, March 12, 2012
Thankful
I know I complain a lot about diabetes but this is what I am thankful for:
I am not thankful for diabetes but I am thankful that I was born in a country and time that I have access to treatment. You see a little over a year ago my 7 year old nephew was diagnosed with a disease that is 100% fatal and has absolutly no treatment.He has as Duchenne Muscular Dystrophy. DMD is a horrible muscle wasting disease and over time he will loose the ability to run, to walk, to breathe and eventually even his heart will give out. Diabetes maybe a complete pain in the butt and SO hard to control but I at least have the opportunity to try. Because of insulin I am at least given the opportunity to grow old, to reach my dreams, to live. Despite the fact that it hurts to prick my finger, that my site change hurts, that sometimes my pumps gives the insulin a little too fast and it hurts I am given the chance to survive. I am grateful, so very very grateful. I hope everyday for a cure but I know I will survive, I will live because right now I at least have a treatment and for that I am grateful.
I am not thankful for diabetes but I am thankful that I was born in a country and time that I have access to treatment. You see a little over a year ago my 7 year old nephew was diagnosed with a disease that is 100% fatal and has absolutly no treatment.He has as Duchenne Muscular Dystrophy. DMD is a horrible muscle wasting disease and over time he will loose the ability to run, to walk, to breathe and eventually even his heart will give out. Diabetes maybe a complete pain in the butt and SO hard to control but I at least have the opportunity to try. Because of insulin I am at least given the opportunity to grow old, to reach my dreams, to live. Despite the fact that it hurts to prick my finger, that my site change hurts, that sometimes my pumps gives the insulin a little too fast and it hurts I am given the chance to survive. I am grateful, so very very grateful. I hope everyday for a cure but I know I will survive, I will live because right now I at least have a treatment and for that I am grateful.
Wednesday, February 22, 2012
So school is in full swing!! I have 5 research papers to write and then my seminar paper. Stress has begun to hit and thus I have upped my basal during the week while I am at school. This new basal will last me till I graduate in May. I am hoping when I get a job after I graduate it wont be as stressful as all these papers! I swear stress does crazy things to my sugars.I feel like I am bouncing all over the place. I go back to the endo in April and I am bringing up getting a Dexcom. I think having that might at least take some of the diabetes stress off.
On to other things Stephen and I bought a new king size bed! I am SOOOO very excited!! We have a queen right now and between us and Maddux and Shadow there is absolutely no room. And I know most people just say kick the pups off but I just can't. I love having my whole family there snuggling with me! The bed comes in Friday!! Seriously I can not wait! I already bought the new comforter so when it is all set up I will add some pictures! We also got a new refrigerator. It comes in Monday... I feel so grown up now new bed, new appliances what big people purchases =)
Well back to researching since I do not think I will have much time tomorrow b/c of a doctors appointment
On to other things Stephen and I bought a new king size bed! I am SOOOO very excited!! We have a queen right now and between us and Maddux and Shadow there is absolutely no room. And I know most people just say kick the pups off but I just can't. I love having my whole family there snuggling with me! The bed comes in Friday!! Seriously I can not wait! I already bought the new comforter so when it is all set up I will add some pictures! We also got a new refrigerator. It comes in Monday... I feel so grown up now new bed, new appliances what big people purchases =)
Well back to researching since I do not think I will have much time tomorrow b/c of a doctors appointment
Wednesday, February 1, 2012
The pump...
So I have been on the pump for about a month now. I think we have gotten my basal all worked out YAY. And then we found out I am allergic to the adhesive (go figure I get everything). I would have a perfect oval rash where my site was and my cannula would get all bloody. Seriously it was NASTY! Don't worry I have thought about sharing pictures but I wont mostly because most of my sites are on the top of my butt. Well I have started using Skin Tac and all seems well so far =). Also found a new favorite site placement, my leg. And I only tried this because all my other normal places were all messed up from the allergy that I need them to rest. I used to HATE taking shots in my legs! And yes I got really excited for this new site placement and that it was comfortable. Believe me if it was allowed I would have probably taken off my pants and showed everyone how awesome this new site placement is (It is the little things that make me the happiest). Stephen thinks I am a little nuts. But so far so good and I am still enjoying the pump.
Tuesday, January 17, 2012
Fighting....
Fight... That is all my life is now, fighting. I am sick of fighting, I am tired of the constant battle.
I am always fighting with my body. Its not fair there are so many hormones in your body that raises blood sugar but only one that lowers it. It is impossible to keep blood sugars in range ALL the time when your pancreas does not work and you are having to fight your own body.
I am always fighting with insurance on what they will and will not cover. Diabetes is EXPENSIVE!!! How can a company say what is best for MY body. These people who make these decisions do not live with this, and even if someone there does have diabetes they still do not understand MY struggle because everyone's diabetes is DIFFERENT! What works for me may not work for someone else and vice versa. Why should a company have ANY say in what will work for me? This company decides how often someone should test their blood sugar and which insulin and what system of delivery works best. Insurance is a constant FIGHT!
I have to fight with school. I have to get a 504 to protect me and even then it does not offer that much protection. Last semester when I taking one of my finals I felt like I was dropping. I took out my meter and tested and sure enough I was in the 40's. The teacher then came up and took my exam and told me to get out. I was very confused and I ran through my mind did I black out and do something crazy? I asked him if we could go in the hall to talk about this. In the hall he told me that I was cheating because I got out my meter. I tell all my professors at the beginning of the semester that I am diabetic and I will have to eat, test and take a shot at some point. Only after I threatened legal action because he was violating the Americans with disabilities act did he allow me to finish my exam. But why did I have to go to such an extreme statement? Why was this even a fight?
Today the local pharmacy I used picked a fight. Yesterday I noticed my insulin was running low and that I needed to go get a refill. I went to Walgreens. I went to the counter and asked for a refill of Novolog but instead of the flexpens I asked for a vial. The tech then told me they could not give me a vial because the prescription said novo log flexpen. I did not understand the difference but I told them to call my doctor and get the new prescription but that I would need the insulin by the next day, January 17. I got up the today and did my regular routine. I checked my blood glucose, 156, ate breakfast which was 45g of carbs and took my insulin through my insulin pump. I then left my house and went to Walgreens to pick up my prescription because I only had 6 units left in my pump and would need to refill and change my pump site before I went to class. When I requested my prescription they told me they had not been able to get a hold of the doctor. I then agreed to the pens because I HAVE to have insulin and the insulin in my pump would not last until lunch. I told them to call the doctor again because I will need a vial but that the pens will do until the doctor could send the refill. The pharmacist then informed me that they were out of Novolog flexpens. I then asked her if she could then sell me the vial since they were out the pens. She said no. I wanted to know the difference between the two because the ONLY difference between the two is the container. A prescription does not reference the container only the insulin in the containers. I then asked the pharmacist what she thought I should do and she told me I should not eat until I get insulin. At this point I got mean and rude and just plain ANGRY! This statement was medically negligent and just shows that this pharmacist does not understand diabetes OR insulin! First off I am a TYPE 1 diabetic. I am insulin dependent and I must inject it to survive. Second there are many hormones in the body to raise blood glucose while there is only one to lower it. Therefore her advice to just not eat would not work. I then left this Walgreens and went to class. While in class my insulin ran out and my insulin pump constantly beeped and disrupted my class. I went from a blood glucose of 125 in my first class at 9:25 to a blood glucose of 299 after I ran out of insulin. I went almost 3 hours without insulin and my blood glucose skyrocketed.
At this point I am tired of fighting... Everything about this damn disease is a fight. I am fighting with my body, I am fighting with insurance, I am fighting with school and now I have to fight with the pharmacy. Having diabetes is tough enough why must we fight an uphill battle to the the care we need? But honestly its not just diabetes that is a uphill battle and complicated song and dance; it is cancer, it is aids, it is the flu, it is every sickness! Why is it such a fight? It is sickening all the hoops we must jump to get the help we need; which ultimately makes us more frustrated AND sicker.
I am always fighting with my body. Its not fair there are so many hormones in your body that raises blood sugar but only one that lowers it. It is impossible to keep blood sugars in range ALL the time when your pancreas does not work and you are having to fight your own body.
I am always fighting with insurance on what they will and will not cover. Diabetes is EXPENSIVE!!! How can a company say what is best for MY body. These people who make these decisions do not live with this, and even if someone there does have diabetes they still do not understand MY struggle because everyone's diabetes is DIFFERENT! What works for me may not work for someone else and vice versa. Why should a company have ANY say in what will work for me? This company decides how often someone should test their blood sugar and which insulin and what system of delivery works best. Insurance is a constant FIGHT!
I have to fight with school. I have to get a 504 to protect me and even then it does not offer that much protection. Last semester when I taking one of my finals I felt like I was dropping. I took out my meter and tested and sure enough I was in the 40's. The teacher then came up and took my exam and told me to get out. I was very confused and I ran through my mind did I black out and do something crazy? I asked him if we could go in the hall to talk about this. In the hall he told me that I was cheating because I got out my meter. I tell all my professors at the beginning of the semester that I am diabetic and I will have to eat, test and take a shot at some point. Only after I threatened legal action because he was violating the Americans with disabilities act did he allow me to finish my exam. But why did I have to go to such an extreme statement? Why was this even a fight?
Today the local pharmacy I used picked a fight. Yesterday I noticed my insulin was running low and that I needed to go get a refill. I went to Walgreens. I went to the counter and asked for a refill of Novolog but instead of the flexpens I asked for a vial. The tech then told me they could not give me a vial because the prescription said novo log flexpen. I did not understand the difference but I told them to call my doctor and get the new prescription but that I would need the insulin by the next day, January 17. I got up the today and did my regular routine. I checked my blood glucose, 156, ate breakfast which was 45g of carbs and took my insulin through my insulin pump. I then left my house and went to Walgreens to pick up my prescription because I only had 6 units left in my pump and would need to refill and change my pump site before I went to class. When I requested my prescription they told me they had not been able to get a hold of the doctor. I then agreed to the pens because I HAVE to have insulin and the insulin in my pump would not last until lunch. I told them to call the doctor again because I will need a vial but that the pens will do until the doctor could send the refill. The pharmacist then informed me that they were out of Novolog flexpens. I then asked her if she could then sell me the vial since they were out the pens. She said no. I wanted to know the difference between the two because the ONLY difference between the two is the container. A prescription does not reference the container only the insulin in the containers. I then asked the pharmacist what she thought I should do and she told me I should not eat until I get insulin. At this point I got mean and rude and just plain ANGRY! This statement was medically negligent and just shows that this pharmacist does not understand diabetes OR insulin! First off I am a TYPE 1 diabetic. I am insulin dependent and I must inject it to survive. Second there are many hormones in the body to raise blood glucose while there is only one to lower it. Therefore her advice to just not eat would not work. I then left this Walgreens and went to class. While in class my insulin ran out and my insulin pump constantly beeped and disrupted my class. I went from a blood glucose of 125 in my first class at 9:25 to a blood glucose of 299 after I ran out of insulin. I went almost 3 hours without insulin and my blood glucose skyrocketed.
At this point I am tired of fighting... Everything about this damn disease is a fight. I am fighting with my body, I am fighting with insurance, I am fighting with school and now I have to fight with the pharmacy. Having diabetes is tough enough why must we fight an uphill battle to the the care we need? But honestly its not just diabetes that is a uphill battle and complicated song and dance; it is cancer, it is aids, it is the flu, it is every sickness! Why is it such a fight? It is sickening all the hoops we must jump to get the help we need; which ultimately makes us more frustrated AND sicker.
Tuesday, January 3, 2012
Sunday, January 1, 2012
Merry Christmas and Happy New Years!!
Christmas was wonderful. I love spending time with the family. Christmas eve we spent at Stephens dads house. Every year I make all the Christmas presents and I absolutely love the fact that every year even though it is not toys the kiddos all love what I make. I really enjoy making the presents. I made all the boys on hubs side beanies with their favorite baseball teams logo on it. All the little boys and their dads matched and I think they all turned out really good. The sister in laws all got bracelets and the great niece got a scarf. When we left their house we went home and picked up the pups and headed the 2.5 hours down to my parents house. We got there and opened our traditional Christmas jammies (I LOVE my Christmas jammies this is the BEST tradition EVER). We just hung out and then Stephen informed me he forgot to pack his shirts he was going to wear. So we decided to trade our presents from each other then since I had bought him a couple of shirts. I got him a couple xbox games, a couple of shirts and Red Hot Chili Pepper tickets for when they come in March. He got me a sweater, some yoga pants and a Kindle. We then went to bed. We got up the next morning. I got ready and then we opened up our stocking stuff and the pups each got a HUGE bone and a new toy. They loved it but I think the bone was a little too big for Maddux. They are both still working on the bones that is how large they are =). My brothers and Sister-in-laws and niece and nephews came over. We ate the traditional breakfast casserole and then we all opened presents. I made all of my side of the families gifts also and they all loved it =). Then we got our family gifts from my parents. They got each of the families a Kindle Fire. I absolutely LOVE both of the Kindles and I love that we have 2 now so each of us can have one. Stephen got me a regular Kindle and I love that the page looks like a book and it is easier to read on that Kindle. The Kindle fire is awesome because of the apps and everything. Stephen loves it because he can read comic books on it; right now he is reading The Walking Dead comic. I am currently on the second book of The Hunger Games trilogy. Amazing books even Stephen really likes them. I read it to him at night and most nights he would rather listen to me read them then play a video game. We headed home Monday afternoon and the rest of the week just rested. For New Years we went to Fayetteville to hang out with my best friend Cat and Stephens best friend Matt. I have other big news on the pump front in that I ordered it on Wed and it was on my doorstep on Friday. I have an appointment on Tuesday at 9:30 to get my basal rates and everything set up =). I am so excited and I now only have one more day of taking Lantus. Well I am going to get back to the sweater I am knitting. Wish me luck with the new adventure of pumping I really hope it goes better then last time!!
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